A Midnight Call for Strength

Let me start today with an apology for not returning to my blog for the last six months. It wasn’t my intention to stop writing. It just happened. All of the sudden, it wasn’t helping me anymore. When I last wrote, I had received a bad PET scan and since then I’ve been struggling with heart and lung problems while continuing my constant monthly chemo. And here’s a shocker … sometimes all the doctors can be so overwhelming!! I’m writing today still without resolving many of those new problems, but I suppose I am moving forward in spite of the unknown.

January, I’ll be sick 3 years. The doctors didn’t believe I would still be here, but I knew I would. And, now, I’m feeling restless. Restless, because I’m just getting sick and tired of the many doctors, all the surgeries and all the pain that is constant in my body. Let me be clear,  I will never give up on me, I will never feel sorry for me, but I will allow me some time to acknowledge the fact that I really hate all this crap. All the doctor appointments and all the time it takes to poke and prod through a diagnosis.

So please allow me to call on all the sick women out there. A new year is around the corner and we need to come together in spirit when the clock strikes midnight. Close our eyes and call to each other for the strength and support women are so good at giving and sharing. We are women on a mission — mothers, sisters, daughter, wives — and we need to push each other through our difficult times. It can be so lonely shouldering this burden alone, trying to be strong for our spouses, our children, our families and friends. But if with stick together, we just might have a chance. The bottom line is that no doctor or other professional has to create our fate or our days spent. We can do that.

So on December 31st at midnight, I’m not gonna waste my time on silly resolutions. I’m gonna use my power to join all the women all over the world to help each other fight this godawful disease. I hope to find some peace in that quite moment. And I hope to share with all of you.

Is it just my imagination? I need to know now

Imagination is a funny thing. As a parent, I’ve loved watching my children at their various stages of development using their imagination in the most remarkable ways. Imagining they are fighting dragons with swords or hosting tea parties filled with impressive people. And as they grow, their imagination grows with them. Imagining they will score the winning goal on the soccer field and be carried off to the roar of the crowd, or playing piano for kings and queens. How marvelous!!!

But for me, not so much. Lately my imagination has been running wild with scenarios no one should have to imagine. A couple of weeks ago, I got a bad PET scan. Not a good thing for a stage 4 cancer patient. Of course, the doctors want to put me through stages of grueling tests to rule out this and that, but I already know. … Or do I? Is it my imagination running wild or is the cancer really back?

I am a fighter not willing to sit around and wait for them to take more tests and compare this to that, so I must find the truth quickly. I don’t have the luxury that children do to allow my imagination to run wild. I must push my doctors to upturn every stone. I need to know what I’m up against.

I realize this is probably not a good thing, but I am in battle mode now. I have my sword out, and the fighting begins again.

To Our Beloved Beverly

One of the most beloved people in my life passed away this week from this cruel decease called cancer. My family feels gutted, heartbroken and completely sad. We watched her pass little by little. My children and I sat by her bedside and talked to her, kissed her and held her hand. I went there every day and put her lipstick on her, fixed her hair and told stories about our shared glory days. She’s really the only grandmother my children ever had other than my terrific mom. Both my husband’s parents are gone.

As I watch my children, I can see in their eyes the deep fear that this is going to be their mom someday. They worry that it will be them someday. And I understand because I worry and struggle with the same thoughts. This has wrecked us … depleted us. We are left with memories twirling in our brains.

It’s so difficult to not make comparisons. Seeing yourself lying there helpless while people come and go and look upon you, cry or hold your hand. I wondered if she was inside there shouting at us all to leave her alone. To stop looking down on her like a fish in a fish bowl. TO GET OUT.

When I was in the hospital in January, it was Beverly who flew in from FLORIDA to care for my children when I couldn’t. We noticed then that something wasn’t right. We never expected brain cancer. We loved her very much.

Today I am more frightened for what I have seen than I was yesterday, so I’m looking forward to that “Time Thing” that they say heals all wounds. But I feel doubtful that this experience won’t leave inside us and will feed on the fear we all share for me and my own lifespan.

Today Mark, Beverly’s husband, sleeps next to a shirt of hers that sleeps placed on the pillow next to his. I wonder about my own husband. I wonder about my children. Today I am not so strong … I am frightened.

Coming Out of Hibernation

It’s been a while.

I know some of you must be wondering why I haven’t posted in awhile, and I do apologize for that. I have been healing from major surgery and finding my new normal.  They say God doesn’t give you more than you can handle … well, God must think I’m a real Bad Ass!!

sunheartIt’s been quite an uphill battle these last few months, and, as spring comes in, I am beginning to emerge from my hibernation. I will say that from the minute I started getting back on my feet, my friends and family have been so happy to see me. I am so fortunate. I show up at a girlfriend’s birthday party or a friends Bat Mitzvah and I’m greeted with such warmth. Maybe because I’m sick I notice everything more, but I look into my friends eyes and there is such genuine pleasure for me, that I am doing well and out and about. I know I have said this before, but I’m so blessed.

As I turn another year older — or, to be more precise, as I turn another year older surviving with cancer — I am grateful for the new year. Grateful that, despite all that the doctors have told me, I am able to celebrate another birthday. It’s funny because if anyone would have ever said I’d be happy to be 48, I would have thought they were high. So today I not only celebrate another year but I celebrate joining my family at the dinner table again. I celebrate attending my kids soccer games and volunteering at their schools. I treasure getting back outside and starting to walk again with the air on my face and my music blaring in my ears. I look forward to going to the movies and out to dinner with my husband. And I love shopping with my mom.

So just a little advice …  when your head hits your pillow tonight, dream of your children laughing, dream of a beautiful sunny day, dream of that perfect ice cream cone and dream of another day.

Living … for the big events and everything in between

Two years ago, right around this time, my doctors told me that I wouldn’t be alive for long. Wow, what a pill to swallow. You see, I was talking to the doctor about my son’s Bar Mitzvah and how it was set for November of 2012 … and he said I wouldn’t make it. He was saying that I wouldn’t see my son on the day he would become a man in the eyes of Jewish law, not to mention all the other things I wouldn’t be here for. But I was determined to prove him wrong. That very day, after I left the doctor’s office, I went home and put down a deposit on a venue for my son’s party.

Viki and Dell on the day after the Bar Mitzvah

Viki and Dell are all smiles on the day after the Bar Mitzvah

And, as you might have noticed, I’M STILL HERE! Last week, I stood on the pulpit with my son and my family and witnessed my son become a Bar Mitzvah. The emotions that I have experienced in the past week are unforgettable. I’m here today to tell the world how proud I am of my son, my family and myself. How surreal is that?!

I will remember that day as one of the greatest in my life. I was surrounded by my family and friends who love me. I could feel their emotions too, pulling me into their warmth and willing me to make my future dreams come true.

I danced!! I did … I danced and laughed and really enjoyed myself. I have been planning this event for two years, and it was everything that I wanted it to be and more. It was such a fun party. Dell had a great time with his friends, and every time I looked at him, he was shining. I think he may have changed a bit himself that day. Today, he seems to walk with more confidence. I think he’s going to be OK. He will make a fine man someday. And no matter what my future holds, no one can take away my part in helping my son grow into the kind of man that would make any mom proud.

Now, as I bask in the warm glow of memories of that day, one thing is clear about the past two years. Having that important event to look forward to gave me huge incentive to drive myself harder and harder every day so I could be there for my son. There wasn’t anything that would prevent me from keeping my promise to my son that I was going to share that special day in his life.

My daughter turned 10 last week, which means her Bat Mitzvah is in three years. The year 2015. I can do this. I know this goal is further away than the first one was, but I’m very capable when I set my mind on something. Besides, I’ve always treated my children equally … why would I change that now? If I was there for Dell’s big day, I must now be there for Bella’s big day as well. So as I write this today, I’m making a promise to myself, my daughter and to my family that I will do whatever it takes to be here on this earth for her special day. Everyone out there who may be reading this, I ask you to help me push forward and continue to keep the inner strength that I know I possess to keep my promise to my daughter.

Family and big family moments are what drive me forward. And it’s also important for me to have a focus within a focus. What I mean by that is, I wake up every day and I walk when it hurts and I take my meds that make me sick and I go about my day with positive energy and joy that today is Monday or Tuesday.

But, make no mistake, I will also wake up and mark my calendar and think, “OK, how many days until Bella’s Bat Mitzvah? Is there anything I need to book or order in advance to ensure her a perfect day? Because her mom is going to enjoy another family moment.” Because her mom is strong!!

Life, Cancer and the Hamster Wheel

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Just when you think life is starting to calm down as much as life can calm down with Stage 4 cancer, something throws you another challenge, just to see if you’re paying attention. Isn’t that Murphy’s Law … anything that can go wrong will?? Well that seems to be my life now … and maybe always has been, even before cancer. Here’s how the latest Murphy’s Law episode goes:

A couple of months ago, I’m finally starting to feel better, I’m walking up to a mile-and-a-half a day and getting organized for my son’s Bar Mitzvah. Then — bam! — my oncologist tells me I have chronic tonsillitis and it’s affecting my immune system. They gotta go, he says. Are you kidding me????!!!!!!!!

So here I sit today, recovering from yet another surgery. What a difficult procedure this was. The pain … oh my. Sometimes I feel like a hamster on one of those wheels and I just go round and around and get absolutely nowhere. Frustration is what I feel the most. I have so much to do. My children started school, and here’s yet another year that I’m missing their open houses and missing more soccer games. Boy does this get old fast!

Now, if I choose to look at the situation differently, I could say this has been the best diet I’ve ever had. Holy cow, even if I wanted to eat … it hurts. How cool is that??!!! My son’s bar mitzvah might not be organized and I might not be able to speak to anyone during the event but, damn, I’m gonna look good! I think I’m gonna have to have my dress altered. How screwed up is that thinking??

Well, screwed up or not, I’m looking forward to getting out of this bed and back to my active life. Getting back on that hamster wheel until the next bump knocks me off … then I’ll get back on and start all over again. Because that’s my life now, and I need to go with the flow. It doesn’t necessarily make it easier to understand, or always seem fair, but I’m lucky that I’m strong and tenacious enough to keep getting on the wheel.

A Different Kind of Bucket List

When I was first diagnosed with cancer, I didn’t think of all the things I haven’t done yet or all the things I need to get done. I thought of my family. Because I have young children, my first thoughts were of them. Wanting to see them grow up, to become responsible adults … and know I had something to do with that. My dreams have been concrete: of weddings and Bar and Bat Mitzvahs, of first dates, of my son’s first shave, of my daughter’s first period, of teaching them both to drive. It was never of all the places I may have once dreamed of going. As a mom with young kids and cancer, I look at things differently than I might at another stage of life. Sure, I used to dream of the places I wanted to travel to when my kids were off to college and I didn’t need to work anymore. But then I got cancer and just didn’t care about that anymore.

Not only are my priorities wrapped up in my children, but so are my finances. Cancer, if you don’t already know, is an extremely expensive disease. There’s the loss of work and income, the health and drug expenses and so on. So concern for my children’s financial future also plays a part in my life plan. All I ever wanted was to have my family secure and happy and be there to take part in it.

But a girl can always dream, can’t she?!! Almost every summer since I was a kid myself, my family has gone to the beach. As a child, it’s a wonderful happy time to run in the sand and play in the water. And as a parent, it’s wonderful to watch your children have those moments. So one of the things I had long wanted to do was go to the beach for longer than a week. (I could rarely get off work for more than that). Last summer, I was knee deep in radiation treatments in Indiana, which means our family hasn’t been to the beach — or barely anywhere, for that matter — in two years. We really deserved a break!

So awhile ago, I started to plot. Now that I’m on maintenance chemo, it finally seemed possible. I spoke with my doctors about rearranging my meds so that I could take some time off. Everyone pulled together to make this happen. At the beginning of July, I grabbed the family and our new puppy, headed to the beach, and didn’t come back until the months end. What a glorious time we had!! The kids buried themselves in the sand, jumped the ocean waves and ate all the junk food they could stomach. I got to put my feet in the sand and feel the ocean spray on my face. I even went down the volcano water slides with my kids and husband!!!!

Poor Jere was so worried because sun and someone who’s just been through radiation don’t exactly mix, but I wore my goofy hat with pride and sat under two umbrellas and had the time of my life. My kids would ask me, “What are our plans for today, Mom?” and I would answer, “ANYTHING WE WANT THEM TO BE!!!!” What a contrast to our day-to-day life that is usually overscheduled with either my doctor appointments or their activities. And the best part was, if they wanted to change their minds, they could. We were free to do anything we wanted. It was glorious.

Though I’m home now and back to all my doctor appointments and busy schedule, I can still close my eyes and smell the ocean breeze on my face. I smile. I may not have a bucket list, but I sure did make a dream come true this summer … cancer and all.